Understanding Functional Neurological Disorder (FND) and Helpful Tips to Support Others
Functional Neurological Disorder (FND) is a complex condition that affects the functioning of the nervous system, leading to a range of physical and neurological symptoms. This blog aims to provide an overview of FND, explore factors that worsen or improve the condition, and offer practical tips to help friends or colleagues who may be living with FND.
What is FND?
Functional Neurological Disorder is a condition where the brain and nervous system fail to communicate effectively, causing a variety of physical and neurological symptoms. These symptoms can include limb weakness, tremors, paralysis, non-epileptic seizures, and difficulties with coordination and balance. It is important to note that FND is not a result of structural damage or an underlying neurological disease.
Factors that can worsen FND:
1. Stress and emotional triggers: FND symptoms often intensify during times of stress, anxiety, or emotional distress. It is crucial to create a supportive and calm environment for individuals with FND to help reduce symptom exacerbation.
2. Physical exhaustion: Overexertion and fatigue can lead to an increase in FND symptoms. Encouraging regular breaks and providing opportunities for rest can be beneficial.
3. Lack of understanding and social isolation: Misunderstanding and stigma surrounding FND can cause feelings of isolation and exacerbate symptoms. Educating oneself and others about the condition can help create a supportive and inclusive environment.
Factors that can improve FND:
1. Multidisciplinary treatment approach: Collaborative care involving neurologists, psychologists, physical therapists, and occupational therapists can help individuals manage their symptoms effectively.
2. Cognitive-behavioral therapy (CBT): CBT can be helpful in addressing the underlying psychological factors associated with FND and developing coping strategies to manage symptoms
3. EMDR on trauma’s and also directly on the symptoms including health trauma (particularly the experience of accessing care) is also helpful, there is a feasibility study ongoing now in the UK, I myself have helped many people with this using EMDR, for some a complete recovery is possible.
4. Support groups: Connecting with others who have FND can provide a sense of community, validation, and shared experiences. Support groups can offer emotional support and practical tips for managing symptoms.
Top tips to support friends or colleagues with FND:
1. Educate yourself: Take the time to understand FND and its symptoms. This will help you provide better support and empathy to individuals living with the condition.
2. Be patient and understanding: FND symptoms can be unpredictable and fluctuate over time. Show compassion, patience, and understanding towards your friend or colleague, even when their symptoms might be challenging to comprehend.
3. Create a safe and calm environment: Minimise stressors and create a supportive environment that allows individuals with FND to feel comfortable and relaxed.
4. Offer practical assistance: Help with daily tasks or offer to accompany your friend or colleague to medical appointments when needed. Small acts of support can make a significant difference.
5. Encourage self-care: Promote self-care practices such as relaxation techniques, regular exercise, and maintaining a healthy lifestyle. These can help manage stress and improve overall well-being.
So what:
Functional Neurological Disorder (FND) is a complex condition that requires understanding, empathy, and support from friends and colleagues. By educating ourselves, creating a supportive environment, and offering practical assistance, we can help individuals with FND manage their symptoms and improve their quality of life. Remember, small gestures of kindness and patience can have a profound impact on someone living with FND.
